Pasco Reporter

The Congenital Heart Futures Reauthorization Act of 2024 has been signed into law, marking a significant legislative step for congenital heart disease (CHD) research and awareness. The bill was introduced by Representatives Gus Bilirakis (R-FL), Darren Soto (D-FL), Buddy Carter (R-GA), and Adam Schiff (D-CA) in the House, with Senators Dick Durbin (D-IL) and Todd Young (R-IN) sponsoring it in the Senate.

This bipartisan legislation will extend funding through Fiscal Year 2029 for essential research conducted by the Department of Health and Human Services. The focus is on understanding the causes and prevention of CHD and developing improved treatments for patients affected by this condition. Despite medical advancements that have enhanced the quality of life for CHD patients, nearly 40,000 babies are born with this defect annually, making it the most common birth defect in America.

With increasing life expectancy among CHD patients, there are now more adults than children living with these conditions in the United States. Approximately two million adults require specialized care to avoid costly health episodes or adverse health impacts. The National Congenital Heart Disease Research, Surveillance, and Awareness Program aims to deepen understanding of CHD's impact over patients' lifespans and develop lifelong specialized care.

"As a co-founder of the Congenital Heart Caucus, I’ve become familiar with the struggles patients with congenital heart disease and their families face," said Congressman Bilirakis. "This new law brings us one step closer to enhancing better treatment options and improving outcomes for all patients suffering with this condition."

Rep. Carter expressed his pride in sponsoring the bill: "During my career as a pharmacist, I’ve seen nothing short of miracles as a result of research and development. For the two million patients suffering with Congenital Heart Disease in America, relief – in the form of a cure or treatment – can’t come soon enough."

Mark Roeder, President and CEO of the Adult Congenital Heart Association, highlighted patient advocacy's role: “Today’s signing...demonstrates the importance of patient advocacy and bipartisan problem-solving."

Leah Evangelista from the Children’s Hospital Association emphasized early detection: “Identifying congenital heart defects as early as possible...is critical to saving lives.”

Organizations such as Conquering CHD, Mending Little Hearts, and the Children’s Heart Foundation support this legislation.